Thank you for sharing your angel Matthew’s journey. It is wonderful that you have the courage to share this very tragic story to educate pregnant women about Vasa Previa. Although I have heard of placenta previa, I had never heard about vasa previa.

Feb 6, 2007
Kindest Regards,
Tammy Clark
Jenna (Feb 17/02 – Nov 22/02 ) – Medium Chain Acyl Co-A Dehydrogenase Deficiency (MCADD)
Ontario, Canada

Your story really touched me. I gave birth to twin girls on Feb 17, 2005. I had a horrible pregnancy. Bleeding early on. Diagnosed with low-lying placenta. Having a doctor that was going to let me deliver in a hospital without a nicu. I asked to be switched. On my first visit with the new doctor I went into preterm labor. They chalked it up to a twin pregnancy and being high risk. I kept saying please check baby B. I don’t feel her move as well as baby A. At deliver they found velamentous insertion on baby B. They never told us. Never put them in nicu or a nursery-had them in the room with me for the three days. When I brought them home-I could tell something was wrong with her. My husband mentioned to me that she had been taken out in a blanket without the sac broken and brought back into the room later. I asked about it at my six week checkup and was nonchalantly told –Oh the umbilical cord was in the wrong spot. After repeated trips to the pediatrician -4 mos later-my daughter is diagnosed with Agenesis of Corpus Callosum and Cerebral Palsy. My heart goes out to you and I understand how special twins are.

Feb 22, 2007
Catherine Caceres

Hi,

I was just trying to find a sight on twin loss and came upon yours. My husband and I had twin girls in July 26, 2001, born 8 weeks too
soon. Emma was twin A 5lbs and Alexa twin B 3lbs. Emma was very sick as soon as she was born, loss of oxygen, due to her placenta.
She lived for 41 days and it was the most trying time in our life, Alexa fortunately survived and at 5 1/2 is doing great, no
complications. I just wanted to express my sympathies with you and that I can relate. I have never really found anybody that wants to
listen and even after this long, there is not a day goes by that I don't think of her. Alexa knows she is a twin and that Emma is an
angel in heaven. She has lots of questions and is very eager to know, we show her pictures and try to explain as gently as we can
when questions are asked. We have since had 2 more children Bailey 3 and Shea 16 months, but no other child can ever or will ever replace Emma.

Thinking of you with prayers.

Feb 28, 2007
Mother of Twin Emma
Paula Henderson
New Brunswick, Canada

Good day,
My name is Cynthia and I am 25 years old. I read your story in the Le Club section on the www.womenshealthmatters.com . I was so touched by your story and the beautiful website dedicated to Matthew's memory. Although i have never been personaly affected by vasa previa nor do i know anyone who has, your story mooved me greatly.

I just wanted to take a few moments to let you know that my prayers and thoughts are with you and Matthew. Also to applaud you in writing your story and applaud your efforts in trying to raise awareness about this vasa previa. Matthew's very short time on this earth and his passing has not been in vain. God had a plan for Matthew as he does for your other son.

Sincerely,
Cynthia Ciavarella
Health and Safety Supervisor / Superviseure Santé-Sécurité
Oct 18, 2007

Dearest Son Matthew,

We love you and miss you. Wishing you were here to celebrate you're 3rd birthday with your brother...but we know that you are with us in spirit. We think you are the most special boy and angel in this world! Rejoice on your special day. Laugh, play and sing in Heaven on your birthday as you know that we honour and remember you always. You will never be forgotten. Until we meet again.

Thinking of you today. I love you so much.

Love, Mommy and family XOXOX
January 12th, 2008

Claudia y Dominic.

Les escribo desde Guadalajara, México; encontré su página investigando acerca de la inserción velamentosa del cordón umbilical. Primero que nada quiero decirles que el plasmar su experiencia y compartirla aún cuando esta es tan dolorosa, para informar y ayudar a prevenir que otras parejas pasen por lo que ustedes, es admirable; les reconozco, les agradezco y les bendigo.

Tengo 14 semanas de embarazo, son gemelos, (monocorial y biamniotico) el diagnóstico a este tiempo ha sido que el crecimiento fetal es armónico, solo que uno de mis bebitos presenta inserción velamentosa y al leer esto en el reporte que le envía el laboratorio a mi ginecóloga me dí a la tarea de investigarlo antes de mi cita para informarme y saber que debo preguntarle. Tengo muchas dudas y confieso que también temor, pero debo tener Fe que como dice en su página esta situación detectada a tiempo puede prevenir cualquier tipo de riesgo. Mi Ginecóloga desde el inicio de mi embarazo y al saber que eran gemelos no vaciló en decirme que tendría que ser cesárea por protección de los bebitos y mía, pero ahora con esta información que tengo en gran parte gracias a ustedes no dudaré en preguntarle sobre su experiencia en estas situación y si es necesario que me refiera a un especialista en partos múltiples y como lo mencionas Claudia, tampoco dudaré en si sus respuestas no me satisfacen, en pedir otra opinión.

Les comparto que pido mucho a Dios que mis chiquitos estén bien, ha sido una bendición en mi familia esta noticia, nos ha traido mucha alegría después de tanta pena, pues hace un año perdimos a mi hermano Rogelio en un accidente de carretera y la recuperación ha sido muy dificil pues no porque él yá no esté salen sus virtudes, en vida fué reconocido como un buen hombre, era un hijo, hermano, esposo, papá y amigo especial. Les comparto esto pues he visto sufrir tanto a mis papás que duele tanto como la ausencia de mi hermano, asi que puedo entender por lo que ustedes han pasado, porque Matthew por pequeño como dice en su página fué una gran pérdida, pero a pesar de su corta vida fué bendecido al tener unos papás como ustedes y bendecido también pues en su nombre muchos bebitos tendrán una oportunidad, gracias a su información.

Nuevamente les doy las gracias y me pongo a sus órdenes si en algo puedo colaborar.

Rosalva
Agosto 10 de 2008

Claudia and Dominic,

I came across your website by chance. I am studying to become a Doula and was doing some research on placental and umbilical cord conditions (namely vasa previa and velamentous). Thank you for sharing your story and pictures. I sit here with tears and a lump in my throat for you and your family. I am so sorry you had to go through such a terrible situation. I am a mother to 4 (I have a Steven as well). My daughter Tori we almost lost as we found after she was born that half of her placenta was clotted - a sign that it was detaching - in retrospect the sudden pains I had a few weeks before delivery that never were investigated by my OB I am certain was this. Luckily it held and the largest problem I had was waiting over an hour for the placenta to detach fully. I atleast was holding my baby at this point.
G'osh, I can so easy feel how you felt the moment your boys were born. The thoughts and feelings you must have had are painstaking. I wish this birth had turned out different. I find this story very heavy on my heart and yes you are a stranger but as a mother I couldn't bare it. You're a very strong person and your children are lucky to have you :)

Study break is in order - can't focus now anyway. Thanks Matthew :) I will never forget your story and will never overlook these conditions again....definitely will help someone at some point I am sure.

Best Wishes,
Jennifer
Ontario, Canada
October 6, 2008

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