Thank
you for visiting our pages. We would love it if you would Add
to this guestbook we are keeping!
Thank you for sharing your angel Matthew’s journey.
It is wonderful that you have the courage to share
this very tragic story to educate pregnant women about Vasa Previa.
Although I have heard of placenta previa, I had never heard about
vasa previa.
Feb 6, 2007
Kindest Regards,
Tammy Clark
Jenna (Feb 17/02 – Nov 22/02 ) – Medium Chain Acyl Co-A
Dehydrogenase Deficiency (MCADD)
Ontario, Canada
Your story really touched me. I gave birth to twin girls
on Feb 17, 2005. I had a horrible pregnancy. Bleeding early on.
Diagnosed with low-lying placenta. Having a doctor that was going
to let me deliver in a hospital without a nicu. I asked to be switched.
On my first visit with the new doctor I went into preterm labor.
They chalked it up to a twin pregnancy and being high risk. I kept
saying please check baby B. I don’t feel her move as well
as baby A. At deliver they found velamentous insertion on baby B.
They never told us. Never put them in nicu or a nursery-had them
in the room with me for the three days. When I brought them home-I
could tell something was wrong with her. My husband mentioned to
me that she had been taken out in a blanket without the sac broken
and brought back into the room later. I asked about it at my six
week checkup and was nonchalantly told –Oh the umbilical cord
was in the wrong spot. After repeated trips to the pediatrician
-4 mos later-my daughter is diagnosed with Agenesis of Corpus Callosum
and Cerebral Palsy. My heart goes out to you and I understand how
special twins are.
Feb 22, 2007
Catherine Caceres
Hi,
I was just trying to find a sight on twin loss and came upon yours.
My husband and I had twin girls in July 26, 2001, born 8 weeks too
soon. Emma was twin A 5lbs and Alexa twin B 3lbs. Emma was very
sick as soon as she was born, loss of oxygen, due to her placenta.
She lived for 41 days and it was the most trying time in our life,
Alexa fortunately survived and at 5 1/2 is doing great, no
complications. I just wanted to express my sympathies with you and
that I can relate. I have never really found anybody that wants
to
listen and even after this long, there is not a day goes by that
I don't think of her. Alexa knows she is a twin and that Emma is
an
angel in heaven. She has lots of questions and is very eager to
know, we show her pictures and try to explain as gently as we can
when questions are asked. We have since had 2 more children Bailey
3 and Shea 16 months, but no other child can ever or will ever replace
Emma.
Thinking of you with prayers.
Feb 28, 2007
Mother of Twin Emma
Paula Henderson
New Brunswick, Canada
Good day,
My name is Cynthia and I am 25 years old. I read your story in the
Le Club section on the www.womenshealthmatters.com . I was so touched
by your story and the beautiful website dedicated to Matthew's memory.
Although i have never been personaly affected by vasa previa nor
do i know anyone who has, your story mooved me greatly.
I just wanted to take a few moments to let you know that my prayers
and thoughts are with you and Matthew. Also to applaud you in writing
your story and applaud your efforts in trying to raise awareness
about this vasa previa. Matthew's very short time on this earth
and his passing has not been in vain. God had a plan for Matthew
as he does for your other son.
Sincerely,
Cynthia Ciavarella
Health and Safety Supervisor / Superviseure Santé-Sécurité
Oct 18, 2007
Dearest Son Matthew,
We love you and miss you. Wishing you were here to celebrate you're
3rd birthday with your brother...but we know that you are with us
in spirit. We think you are the most special boy and angel in this
world! Rejoice on your special day. Laugh, play and sing in Heaven
on your birthday as you know that we honour and remember you always.
You will never be forgotten. Until we meet again.
Thinking of you today. I love you so much.
Love, Mommy and family XOXOX
January 12th, 2008
Claudia y Dominic.
Les escribo desde Guadalajara, México; encontré
su página investigando acerca de la inserción velamentosa
del cordón umbilical. Primero que nada quiero decirles que
el plasmar su experiencia y compartirla aún cuando esta es
tan dolorosa, para informar y ayudar a prevenir que otras parejas
pasen por lo que ustedes, es admirable; les reconozco, les agradezco
y les bendigo.
Tengo 14 semanas de embarazo, son gemelos, (monocorial y biamniotico)
el diagnóstico a este tiempo ha sido que el crecimiento fetal
es armónico, solo que uno de mis bebitos presenta inserción
velamentosa y al leer esto en el reporte que le envía el
laboratorio a mi ginecóloga me dí a la tarea de investigarlo
antes de mi cita para informarme y saber que debo preguntarle. Tengo
muchas dudas y confieso que también temor, pero debo tener
Fe que como dice en su página esta situación detectada
a tiempo puede prevenir cualquier tipo de riesgo. Mi Ginecóloga
desde el inicio de mi embarazo y al saber que eran gemelos no vaciló
en decirme que tendría que ser cesárea por protección
de los bebitos y mía, pero ahora con esta información
que tengo en gran parte gracias a ustedes no dudaré en preguntarle
sobre su experiencia en estas situación y si es necesario
que me refiera a un especialista en partos múltiples y como
lo mencionas Claudia, tampoco dudaré en si sus respuestas
no me satisfacen, en pedir otra opinión.
Les comparto que pido mucho a Dios que mis chiquitos estén
bien, ha sido una bendición en mi familia esta noticia, nos
ha traido mucha alegría después de tanta pena, pues
hace un año perdimos a mi hermano Rogelio en un accidente
de carretera y la recuperación ha sido muy dificil pues no
porque él yá no esté salen sus virtudes, en
vida fué reconocido como un buen hombre, era un hijo, hermano,
esposo, papá y amigo especial. Les comparto esto pues he
visto sufrir tanto a mis papás que duele tanto como la ausencia
de mi hermano, asi que puedo entender por lo que ustedes han pasado,
porque Matthew por pequeño como dice en su página
fué una gran pérdida, pero a pesar de su corta vida
fué bendecido al tener unos papás como ustedes y bendecido
también pues en su nombre muchos bebitos tendrán una
oportunidad, gracias a su información.
Nuevamente les doy las gracias y me pongo a sus órdenes
si en algo puedo colaborar.
Rosalva
Agosto 10 de 2008
Claudia and Dominic,
I came across your website by chance. I am studying to become a
Doula and was doing some research on placental and umbilical cord
conditions (namely vasa previa and velamentous). Thank you for sharing
your story and pictures. I sit here with tears and a lump in my
throat for you and your family. I am so sorry you had to go through
such a terrible situation. I am a mother to 4 (I have a Steven as
well). My daughter Tori we almost lost as we found after she was
born that half of her placenta was clotted - a sign that it was
detaching - in retrospect the sudden pains I had a few weeks before
delivery that never were investigated by my OB I am certain was
this. Luckily it held and the largest problem I had was waiting
over an hour for the placenta to detach fully. I atleast was holding
my baby at this point.
G'osh, I can so easy feel how you felt the moment your boys were
born. The thoughts and feelings you must have had are painstaking.
I wish this birth had turned out different. I find this story very
heavy on my heart and yes you are a stranger but as a mother I couldn't
bare it. You're a very strong person and your children are lucky
to have you :)
Study break is in order - can't focus now anyway. Thanks Matthew
:) I will never forget your story and will never overlook these
conditions again....definitely will help someone at some point I
am sure.
Best Wishes,
Jennifer
Ontario, Canada
October 6, 2008
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